I survived 5 brain haemorrhages in December 1992 before getting a scan and then life saving brain surgery to remove a colloid cyst from the third ventricle, on the top of my spine, in the middle of my brain … More Paul’s Story
… told by her mother
One year before Anna’s birth I was carefully “minding the gap” and also trying to lose baby weight from my first pregnancy. First pregnancy went great, Paul was born 7 days later … More Anna’s Story
Description of Injury Event and Initial Treatment:
CASK mutation related to mutation in X-chromosome. First study on CASK mutation was published in 2008 and Anna was born in 2009.
Where treatment took place: … More Anna’s Brain Injury
How does one put this in words? Roger was found unconscious in Bushy Park, having come off his bike on the way to work. My initial feelings were fear at the thought of his death. How did you learn about potential injury impact on survivor? … More Sara’s Perspective
Found in Bushy Park, I was riding to work. Memory stops about a minute before so no ideas as to the why. I was taken to St George’s where I had a head to hips CT scan and ECG. This found that I had fractured my skull, with bleeds … More Roger’s Story
We were fortunate enough to meet Ben and his father at the ABIL conference in September. Sharing the stage with other brain injury survivors is an important way for us here at BITP to network and help promote a supportive online … More Ben Again
Having a brain injury is not a death sentence (although it sometimes feels like it), your brain is an incredible part of your body with tremendous capacity to heal and repair itself. If you have an acquired brain injury it is enormously … More UKABIF Short Film Award
I was run over on the pavement in Santo Domingo, Dominican Republic 1 block from our hotel with my girlfriend who died instantly. I jumped away so was knocked into a coma and had no broken bones. Some medical staff were in the car … More Ben’s Story
On 28/07/2015 I am told that I was working in a back office, on my own, when I came out to my colleagues complaining of a headache and then proceeded to collapse on the floor. First aide was given (CPR) whilst an ambulance was called … More Philip’s Story
RTA leading to craniotomy in 1996 (a surgical operation in which a bone flap is temporarily removed from the skull to access the brain). Bone flap replaced towards end of ’96.
6 years later (some point in 2002) the bone … More Sam’s Story